Upcoming Events

6th Annual CureNFwithJack DC Golf Classic

Monday, October 23, 2017 - 8:00am

Thank you to all our participants and donors who have generously supported our CureNFwithJack Charity Golf Classic! Over the past four years we have raised over $250,000! Just as importantly, we hope that this event creates awareness of NF, so that as a community we can support the medical research necessary to ultimately find a cure for all the children and their families impacted by...

Latest from our Blog

Hey guys!  Want to buy a bracelet?

Many of you know that Jack recently started middle school.  Now, middle school is a big transition for anyone and my estimate is that about 99.9% of the adults I talk to hated middle school for a...

It is day 9 of NF Awareness month. As you may know, many kids with NF struggle with core strength issues and other side effects...

I'm Jack

We knew Jack had NF right after his second birthday.  For quite awhile Beth and I were pretty devastated by the news that our boy had a genetic disorder.  In fact, when we initially found out we...