CNFWJ operates under the guidance of the core set of values outlined below, which serve as a compass in the fight against NF.

Attitude. 

CNFWJ is “in it to win it.”  CNFWJ operates with the unwavering belief that a cure and/or effective treatment for NF can and will be found with the proper funding, talent and perseverance (and perhaps, like anything else, a little luck too).  None of us believe this is an impossibility. No one at CNFWJ settles for anything less.

Immediacy.  

We believe that time is of the essence for all of those affected by NF and seek to find a cure within Jack’s lifetime.  Accordingly, the foundation of all of CNFWJ’s goals is based on avoiding time-consuming duplication of efforts and accelerating research to the best of our ability.

Perseverance.

CNFWJ’s vision of ending NF is simply stated, but far from easy.  We are steadfast in achieving this goal despite the difficulties or delays in achieving it.  The perseverance of all of those with NF provides motivates all those at CNFWJ to persevere.

Collaboration.

We value, acknowledge and seek to align ourselves with all outside partnerships and the relationships of those who help CNFWJ find a cure for NF.

Integrity.

CNFWJ will always operate in an ethical and honest manner in all transactions and with each other and others outside of the organization.

Teamwork.

CNFWJ, its Board and its volunteers will treat one another with respect and will join together to share ideas, team together to execute actions, support one another’s ideas and efforts and celebrate the team’s successes.

Inspiration.

CNFWJ’s Board and volunteers will strive to advance Jack’s inspirational battle against NF and look to be inspirational themselves in contributing to the fight.