Jake's Blog

Battle Bracelets

Battle Bracelets
About 2-3 weeks into Jack's treatment we were driving home and he asked me to "get rid" of his white hospital bracelet.  When we got home he ran to the kitchen and got the scissors for me to cut it off.  "I hate these things Dad".  I didn't have to ask why.  I knew.  First, it reminded him that he is sick and needs chemotherapy. Secondly, they are irritating.  After I cut it off I threw it in the... Continue Reading

A Hero meets a Legend on a roller coaster

Hero meets Legend
There is so much to write about and share with you.  First and most importantly is that Jack is no longer receiving chemotherapy treatments.  He has endured 48 weeks of this treatment and we are now glad it is over.  On the very last week he came down with awful, debilitating mouth sores and perhaps the last 2 weeks were the worst of the entire process.  So there is joy in that he has completed... Continue Reading

CureNFwithJack on The Golf Exchange presented by the Honda Classic.

On Sunday, I was invited to talk about the CureNFwithJack Tournament in West Palm Beach.  The hosts Russ Evans and Craig Dolch were so great and did a terrific job with the interview and getting the message across.  I tried my best to inform folks and not sound too foolish!  Click on the link below to take a listen and if you want to sign up you can do so at this link:  http://curenfwithjack.com/... Continue Reading

CureNFwithJack and Pandora's Box

Burke, Jack Burke
It has been a while since our last update and lots has happened. So many people continue to keep Jack in their thoughts and actions. We had a record breaking Yard Sale in July, Allison Maffei and her children did a coffee and donut fundraiser which educated about 100 NEW people about NF while raising over $1,000.00. The Budds Family. The Moss Family. The Flynn Family and their daughter Emma.... Continue Reading

Allison, Ansley, Blake and CureNFwithJack

This morning I received the video you see here from our friend and tremendous supporter Allison Whitley Maffei.  This is one post I really do not have to write too much about because the video says it all. "If you thing you are too small to make a difference, try sleeping with a mosquito". I hope you enjoy.

Valor, Wisdom, Presence and Brotherhood

Brothers in Arms
I don't attend church services very often for reasons that are too complicated and quite frankly irrelevant for this post.  Having said that, I attended a service yesterday at a local church called Stone Creek.  It was nice to do so with Beth and the kids for Father's Day.  Pastor Steven Gibbs does a great job but honestly I often go for the music. Yesterday though, Pastor Gibbs got me pretty... Continue Reading