Jake's Blog

Jack's Journey

Jack's Journey
This has been a busy week for the Burke family. On Monday we premiered this film about Jack's Journey battling Neurofibromatosis (NF) at our 3rd annual Atlanta CureNFwithJack Golf Classic. The golf tournament was well attended (we even had a waiting list), was great fun (Jack got to shoot a real canon to start the day) and we raised money and awareness about Neurofibromatosis. Today was... Continue Reading

I got caught...

Welcome to CureNFwithJack golf
My last update was just a week or so ago.  I have received a lot of feedback about the update and noted that many people had said I didn't focus on too much about Jack's course of treatment, etc.  Instead I focused on a lot of the GOOD that has transpired from people responding to Jack and his challenge.  The news articles, the money raised in his name ($400,000 in 2013-2014), the upcoming "Front... Continue Reading

Cupids, Sigma Chi's, and Front Row

Jack and Luke at Cupid's
It has been almost 2 months since my last update and for that I apologize.  It means this one may be very long.  It also means that I found it hard to write that last few times I began an update. I am not sure why honestly.  These last 6-8 weeks have given us more to update you on than any other block of time in recent memory.  I just didn't have it in me before today.  So, in no particular order... Continue Reading

9 years and 9 million lessons

all grown up
As I write this Jack is going to sleep with anticipation of celebrating his 9th birthday tomorrow.  Like most soon-to-be 9 year-olds he is pretty excited.  Unlike most he had an appointment for chemo today.  I don't want to make this update too much about that however.  Just know that today his counts were too low and he could not receive chemo.  Essentially I am learning as I go here but the... Continue Reading

If love were the currency for a cure

The Boston Stars
Welcome to 2014 and the latest update on Jack's fight.  Lots to share.  And the usual rules apply:  the good and the not so good included.  We have been extremely blessed by the generosity of friends, family and strangers alike particularly since Jack's glioma diagnosis and certainly during the holidays.  We have received care packages from the McLaughlin's, Gordon's, Fagan's, Palbicke's, Davis'... Continue Reading


Several weeks ago, Jack went to his typical chemo infusion.  It started off as usual – first to the front desk to get his wrist band after numbing cream is applied to his port, blood work and weigh-in with the nurse, the 100-point check list with another nurse, and the wait to see the oncologist, before the wait (and wait) in the infusion room.  When Jack’s oncologist came in, he of course asked... Continue Reading