Advocacy
There is a simple and easy way to make a difference. Support is always needed to urge Congress to continue to support the Congressionally Directed Medical Research Program – NF Research Program (CDMRP-NFRP). The research supported through this Program seeks to bring an end to NF, and will affect not only those suffering from this disorder but also stand to benefit the 175 million Americans suffering from cancer, brain tumors, heart disease, memory loss, and learning disabilities.
Thanks to the advocacy efforts of many in the NF community, including CureNFwithJack, $20 million in federal funding was secured for NF research (through the CDMRP-NFRP) for 2021. Due to Covid-19, our CureNFwithJack advocates could not head back to our nation’s capital in February of this year, but held virtual meetings instead with many members of Congress to advocate for $25 million in funding for fiscal year 2022. The team did an amazing job, and now we ask for your help.
YOU can help us secure federal funding for NF research in less than 2 minutes! Please help CureNFwithJack with this apolitical request. Use the link below to encourage YOUR Congressional members to add their names to support $25 million for NF research for fiscal year 2022 before the April 19 deadline. The language of the request is already provided – you only need to enter your name, address and email. These funds are CRUCIAL to ongoing research – the NF research community cannot operate successfully without them. Thank you for your support!